Longreads – Jacqueline Alnes – “…I did not request accommodations until the second year of my PhD. For seven years of school, whenever I experienced a flurry of episodes, I’d spend an inordinate amount of time trying to read passages that had once felt joyful to engage with and arrive at class with blurred vision though I looked “just fine.” I managed my symptoms privately. And I am certainly not alone. Applying for accommodations at university, at least in my experience, seems easy in theory, but brings up complications. First, there is the stigma. For years, I worried that if I applied, I would be seen the same way my professor saw me during my undergraduate degree: as being too lazy to finish my work or attend class. I worried about being hired down the road. I feared that professors would see the way I present myself — I try hard to look well, no matter how I’m feeling — and think I was faking. My symptoms have disrupted some of the most sacred and mundane moments of my life without discrimination, but without an official diagnosis, I was afraid I wouldn’t be able to apply for accommodations in the first place. Once I did decide to, I had to secure a letter from my neurologist, which I imagine can also be an obstacle for students who lack financial resources for an additional visit or are discriminated against by medical professionals. I wish I had access to S.E. Smith’s empowering guide “How to Get Disability Accommodations at School” when I was learning to advocate for myself. It clearly explains laws, when to apply for accommodations, and how best to do so.
Seeking accommodations in school has been addressed recently in essays like “Could the fallout from the admissions scandal hurt kids with disabilities?” and “The most reprehensible part of the college admissions scandal: faking disability accommodations” because of the college admissions scandal, but I believe this is a conversation we should be having regularly. Students with disabilities should receive accommodations without having to perform exhausting physical and emotional tasks. I will heed the voices of others fighting the same fight and listen to their testimonies as I work as a member of a university to make change. This reading list is a place to start…”